Click questions to view answers.
Where and when is the event with Nastia Liukin?
The event with Nastia Liukin will take place at:
Nastia Liukin @ Beach Bounders Gymnastics & Athletics
Sunday, May 19, 2019
(9:00 am – 2:00 pm)
400 S Brown Street
Fruitand, MD. 21826
What are we fundraising for?
The Alana Rose Foundation
Alana seemed to be a normal baby. She was hitting all of her milestones and almost crawling by eight months. All of the sudden, we started noticing extreme fatigue, constipation and dehydration. We knew something wasn’t right. Five days after her eight months she was admitted to A.I DuPont Hospital for children for 46 days. The hospital stay started with countless tried for an IV and blood samples, and treating for infant botulism with an antibody for the toxin while we waited for the test result. The antibody is not harmful with no botulism, so we were ok with the preventative treatment and had high hopes. We were expecting a full recovery, however, she wasn’t improving like they hoped. Ten days later, we got the test back and it was negative. We were back to the beginning. Here she was getting worse, and no one knew why yet. The next step was an MRI of her brain, and the results; devastating. The MRI showed advanced leukodystrophy. The image of her brain was very bright, and that meant white matter deterioration. Our hearts broke.
Leukodystrophy is the deterioration of the myelin sheath that protects the nerves in the brain. Without your myelin sheath, your nerve impulses get bounced around like an uninsulated wire, making the body unable to relay brain signals. To get more answers, Kyle and I waited, not so patiently, for the full series DNA sequencing test to return. When we received the results, we both found out that we had mutated BOLA 3 genes, however, Kyle’s mutation has never been reported. Her gene mutation is new and complicated. The results also showed that she has an unknown variant of non-ketotic hyperglycinemia.
Her brain suffered from the deterioration of white matter, high glycine and high lactic acid levels. The doctors told us that she probably won’t make it to her first birthday. Everything we ever dreamed of for Alana, was shattered. Her childhood was robbed; we were all robbed! She was supposed to experience so many things. We entered a very dark place. But with the help of our family, with the help of our community, and most importantly, with the help of God, we found our strength and perseverance. We found the true meaning of “I’d do anything for my child”.
Everyday was nothing short of a blessing to have Alana. Everyday we saw progressions in her disease. Alana fought so hard, and for so long, and beat all odds, and still smiled through it. She’s was our hero, but since December 16, 2015, at 15 months old, she became our guardian angel. We hope that she realizes how many lives she’s touched, and will continue to do. We will spend the rest of our life living to prosper her legacy. This foundation is for her and because of her, and we hope everyone enjoys the ups and downs of parenting, because some of us don’t get to experience it. Thank you to everyone who helped us spend Alana’s last days, together.
Thank you, and God Bless
Kyle, Alexa & Angel Alana
The Alana Rose Foundation works to provide financial assistance to families with a terminal or life-threatening illness to help with travel, housing and/or living expenses for qualified families, making children happier and healthier by keeping their family together.
What began as a single family struggling to find a way to alleviate financial burdens to spend time with their daughter, grew quickly into a foundation committed to helping families remain together through hardship.
How do I get to have lunch with Nastia Liukin?
The top 10 overall fundraisers will attend a private lunch with Nastia immediately following the fundraising event. The top 2 fundraisers will sit right next to Nastia!
How do I meet Nastia for pictures and autographs?
Everyone who raises a minimum of $250 meets Nastia for pictures and autographs! Bring something special for her to sign!
How do I get to have a private gymnastic clinic with Nastia Liukin?
All gymnasts raising $125 will participate in a separate private clinic with Nastia.
The top 30 overall fundraisers will get to participate in an additional private gymnastic clinic with Nastia Liukin
When is the fundraising deadline?
Fundraising ends Wednesday, May 15, 2019 at 11:59 pm Eastern.
Are there any other prizes associated with this fundraiser?
We will be holding weekly fundraising contests for additional prizes. Check the fundraising website often!
Check out our fantastic prize lineup (with dollar amounts that must be raised to win each prize):
Raise money, help others, and score awesome prizes. It’s a win-win-win!
- $125: Attend a gymnastics clinic with Nastia, and receive an event wristband.
- $250: Meet Nastia for pictures, autographs and Q&A session. Parents welcome!
- $500: Original artist’s rendering poster of Nastia.
- $1,000: Nastia will present you a signed Certificate of Fundraising Excellence during the Q&A session.
- $1,500: You’re taking home a snazzy trophy to show the world that you’re a fundraising CHAMPION! Nastia will autograph and personally present your new hardware
- $2,000: Bring an extra guest to the event – whoever you like!
- $3,000: Attend a private Rio Olympics roundtable discussion with Nastia. Learn about the Olympics from an Olympian!
- $5,000: Pose alongside Nastia in the official event picture that Nastia will post to her 1 million social media followers!
- $12,500: FUNDRAISING GOLD MEDALIST! The all-time individual fundraising record for a Lucas Sports Inc. event is $12,500. Beat this record and Lucas Sports will give you a $1,000 Amazon gift card!
Go for the top! Our top overall fundraisers will win awesome experiences with Laurie!
- Top 30 will participate in an additional private clinic with Nastia. This is an amazing opportunity to get tips from a world champion gymnast!
- Top 10 will attend a private lunch with Nastia. Bring your questions, your camera, and your appetite!
- Top 2 will attend the private lunch – seated next to Nastia!
When I raise $2,000 what does my guest get to participate in?
You can bring anyone you’d like! Your guest can watch your clinic but not participate in it. Your guest will meet Nastia for pictures and an autograph, and receive the original artist’s rendering poster of Nastia. If you are a top 10 overall fundraiser your guest will attend the lunch with Nastia and will sit at the parent’s and guest table.
I lost my fundraising link! Where can I find it?
Lost your link? NO PROBLEM! Go to https://beachbounderswithnastia.org/registered-gymnasts/.
Can someone donate by mail?
How quickly are donations credited to my gymnast fundraising page?
Online donations are credited immediately (allow a few moments for payment processing). Mailed-in donations can take up to a week to be credited.
When will I get my incentive prizes?
You’ll receive your incentive prizes at the event.
What do I do with my fundraising link?
Email or text your link to family and friends and post it to your social media pages.
Can I register the entire family or do they need separate registrations?
Each gymnast must have a separate registration.
How do I log in if I want to update my page?
Go to https://beachbounderswithnastia.org/wp-login.php and enter your user name and password. Once you are logged in, you should be on your profile page and can update the information.